Monday, 18 June 2018

Stornoway research day series: Self-management

MS Specialist Nurse for the Western Isles, Rachel Morrison, talks about the importance of self-management in multiple sclerosis. And she covers some top tips for managing your own condition.

Sunday, 17 June 2018

Stornoway research day series: Understanding your MS symptoms

Dr Stewart Webb defines what multiple sclerosis is, and what's going on in the body when you feel certain MS symptoms. 

Saturday, 16 June 2018

Stornoway research day series: How nutrition and exercise can make a difference

Our Glasgow colleague Dr Sarah Martin discusses different diets that claim to improve MS symptoms in this talk for the people with MS and their families on the Western Isles.

Friday, 15 June 2018

Stornoway research day series: What makes up the neurologist's toolkit?

Neuro Doc Gnanapavan discusses the ways that neurologists currently diagnose and monitor MS in their patients. 

New primary progressive study - ORATORIO-HAND

Yesterday there was a press release from Roche announcing ORATORIO-HAND a new phase 3 trial in people with PPMS, but only this time recruitment will extend beyond EDSS 6.0 up to EDSS 8.0, i.e. wheelchair users. The primary outcome will be the 9-hole peg test.

For people in the field of MS, the announcement of the ORATORIO-HAND trial represents a milestone in the history of MS. It challenges the dogma that once you have more advanced MS (progressive disease) that you are 'irredeemable' and sends a message of hope to all people with MS in wheelchairs that we haven't forgotten you.

I hope that our long-running #ThinkHand campaign will play a part to play in getting the wider MS community and other relevant stakeholders behind this study.

Alison Thomson presenting our #ThinkHand campaign at the 2016 MS Trust Conference 

Thursday, 14 June 2018

Stornoway research day series: Current and upcoming treatments

Another talk from our Stornoway research day series. Here, Dr Pushkar Shah talks about multiple sclerosis treatments that are currently available, and ones that are being developed. 

NIH Grand Round: what is an IRT?

As promised the following is my slide deck from my presentation at the NIH grand round on Tuesday morning (12-June-2018). I was surprised to find out that none of the MSologists at the NIH prescribe DMTs; they leave the decision up to the treating neurologist. The NIH MSologists only see patients as part of research protocols. However, the resources at their disposal for research is quite extraordinary. They are a very privileged group of researchers.

After the meeting, someone asked me what excites me most about MS research at the moment? Can you guess what I said?

Wednesday, 13 June 2018

Stornoway Research Day series: Can we prevent or slow down MS?

Dr K discusses the difference between insidious MS symptoms and ageing, progressive MS and relapsing remitting. He explains the Think Hand campaign and the research into preventing and slowing down MS.

Tuesday, 12 June 2018

NIH Charcot Lecture 2018

I delivered my Charcot lecture at the Washington Press Club, to approximately 125 people, last night. My main message was that there are compelling reasons to do MS prevention studies and if we don't start them ASAP we will be letting down the next generation of people who will develop MS. I view this as a ticking time bomb. The continual increase in the incidence of MS across the world, particularly in places like Scotland and central Canada, indicates that we have an epidemic on our hands. Don't you think we need to do something about it?

Thank you for completing the MS prevention survey; I included the results in my talk and one very touching and poignant quote.

4am knows all my secrets

Mult Scler Relat Disord. 2018 May 23;24:32-37. doi: 10.1016/j.msard.2018.05.016. [Epub ahead of print]

Analysing the relationship between polysomnographic measures of sleep with measures of physical and cognitive fatigue in people with multiple sclerosis.