Wednesday, 28 September 2011

Making EUReMS count for people with multiple sclerosis

The Lancet Neurology. Making EUReMS count for people with multiple sclerosis. Lancet Neurol. 2011 Oct;10(10):865.

An insightful editorial on the new European Register for Multiple Sclerosis (EUReMS), which aims to collect comparable and reliable data on MS across the EU. 

The mains points are:
  1. EUReMS was launched on July 1, 2011
  2. The first forum to discuss the project will be held at the ECTRIMS meeting in Amsterdam in October. 
  3. An estimated 2·5 million people have MS, and about a quarter of them live in Europe. 
  4. The European MS Platform (EMSP), an umbrella organisation for MS societies from 34 countries, is coordinating EUReMS as a multidisciplinary partnership of clinicians, researchers, and patient groups. 
  5. The European Commission has provided ~€1 million to take EUReMS forward over the next 3 years. 
  6. By June, 2014, EUReMS aims to have agreed on a core set of data for collection and to have gathered this information from national registries in 10 countries. 
"This is an ambitious project and it is important that MS'ers have a say in its development. I hope the more active readers of this blog will contribute to the development of this resource."

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