"Although not unanimous two-thirds of MSers would be prepared to self-monitor the impact of MS on their lives and would use a web-based tool or smart phone app for the this purpose. The challenge now is to get this initiative off the ground. Any ideas?"
"What will we, the healthcare providers, use the data that you generate for? (1) to look at the impact of MS on things that matter most to MSers; (2) to look at the impact of treatments on certain aspects of your life that were not captured in pivotal trials, e.g. relationships, employment, falls, fractures, quality of life, etc.; (3) to use the tool to do clinical trials using outcomes that are more meaningful to you as people with the disease; (4) to improve the interaction you have with your neurology team, the tool may improve the interaction you have with them so that when you see them valuable time is spent focusing on aspects of your MS that are problematic; (5) the data collected from such a tool could be used to demonstrate value for money to payers or commissioners regarding expensive interventions, e.g. fampridine. (6) Etc."