Thursday, 13 December 2012

Unrelated Blogger Comments

Sometimes you want to say something that is unrelated to the threads. This is a spot for You. Previous comments can be got at on the posts on the right of the main page.


15 comments:

  1. I do love your advent calendar, and admire the creative genius at work!

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  2. Thanks,I could not have done it without the talent of the HOUSE OF MOUSE and their fun little characters but now the guys in the lab are wondering whose's next.....they will have to wait and see...More nonsense to follow!

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  3. I imagine they're running scared... I look forward to the days running up to Dec 25th :-) Well done House of Mouse.

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  4. Some science skeptics drew my attention to this erudite expose of homeopathic solutions. Enjoy:

    http://www.youtube.com/watch?v=HMGIbOGu8q0&feature=player_embedded

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  5. Take care and have fun tomorrow MD!

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  6. Replies
    1. Congrats on the successful run! It was actually not the mankini but the horrid uvalitis pic above (have to scroll down real fast every time I see it). Had a really sh*** day today so a bit of goofing around was just right, thanks for the pics Mouse.

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    2. I am eye squeamish too. I once was at an eye meeting in florida and the things that can get stuck in eyes it was gruesome.

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  7. Apologies, but I need a rant!

    So today I want to kick, scream, froth at the mouth and generally have a tantrum a 2 year old would be proud of! 1 month on from the date I should have seen a neurologist at Bart’s and 2 weeks on from a direct referral to a specific neurologist at Bart’s and I still don’t have so much as a new appointment letter! This would be frustrating enough without the fact that over the past few days I have been experiencing some numbness in my feet and without a neurologist I do not even have access to a MS nurse so I have absolutely no-one to talk to about it! The over-riding message from this blog is hit MS hard and fast, but at the moment, 1 year on from first symptoms, I haven’t seen any form of MS specialist and I am frustrated and scared. At the moment I have the ability to write letters and make ‘phone calls and generally be a bit of a nuisance, and I’m not able to get a flipping appointment. I dread to think what will happen to me if I reach the stage when I’m not able to do this for myself and if I don’t have anyone around to fight for me. I’m sick and fed up with everything about this flipping disease and I know it’s hardly touched me yet! No wonder some people just give up.

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    1. Calm down Posy- many of us including myself had their first treatment one year after the initial symptoms because the dogma 'hit hard & fast' has not been known/is still not known to many neuros. In the meantime I also experienced numbness in my feet and vertigo and... but it got better. You won't get disabled so soon and will have many more years to make phone calls, just don't panic. You're lucky to be at Barts and soon you'll get your meds.

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    2. Dear Posy
      I remember Prof G asked you to write to him. Do it again, I do not know what was done last time, his email is in the team details. Prof G will be back for Thursday. Not sure that this will speed the process, but Prof G is snowed under as his lackes adequate PA/secretarial support

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    3. I did write him an email, but I know he is incredibly busy and doesn't have time to hand-hold, so I followed-up with my GP after continuing to follow-up with Bart's appointments dept. I have several friends who work at the "sharp end" of the NHS and know that admin problems drive them as insane as the patients, but that doesn't bring much comfort, sadly.

      I have a terrible lack of patience, because I am a doer, so having to sit back and just wait, having no clue as to whether the referral has even been received is driving me mad, especially after having gone through the appointments system and been felled at the first hurdle! It didn't help that after finally getting my head around things, I'd been really looking forward to having a conversation with a specialist: I'd written a potted history and everything! Time doesn't appear to be on our side with this disease, so that makes sitting here twiddling my thumbs even more irritating! I'm sorry for ranting here, but my loved-ones feel worried and helpless enough without me complaining about something they can do nothing about.

      If pesky things like my mortgage didn't have to be paid, I'd volunteer to be Prof G's admin bitch!

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  8. What's going on in the Orkney Isles?
    http://www.guardian.co.uk/society/2012/dec/10/orkney-islands-multiple-sclerosis-rate

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    1. Nothing I wrote to the local Ornkney Newspaper a few months ago about this and not so much as a peep

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  9. I have no idea whether this has any relation to MS "brain stuff", but it caught my eye!

    "Biologists in China have published a study detailing how they transformed common cells found in human urine into neural stem cells that can be used to create neurons and glial brain cells. The find holds huge potential for the rapid testing and development of new treatments for neurodegenerative disorders."

    http://www.wired.com/wiredscience/2012/12/urine-stem-cells/

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