Wednesday, 9 January 2013

Google Trends and CCSVI

"Google Trends as an epidemiological tool to study social phenomena continues to fascinate me! The following is the latest update on CCSVI. What do you think?"

45 comments:

  1. This comment has been removed by a blog administrator.

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    1. Indeed, I feel the role of man boobs as a risk factor for the development of MS has been unjustly overlooked for too long.

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    2. Can't wait to find out about the deleted moob story

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    3. The spammer complained about the spam on his blog and asked how you deal with spam.

      And ended with the usual invitation to see his blog about ____

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    4. Whoops! Just fell off my chair laughing. Maren Rasmussen? You are Cece, the second biggest shill for CCSVI on This is MS.

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    5. At least Maren is not behind anonymous mask.. it is so easy to say not-so-polite-or-intelligent comments anonymously. Maren, don't care about these kind of comments.

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  2. Hmm boobs may have something to do with it as MS affects more women than men... my dear Watson, have we overlooked something?

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  3. My humble opinion is.. that CCSVI is the best thing that has happened in MS research, ever.

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    1. As I am travelling through Yorkshire at the moment
      "Each to their own"

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    2. I think so too, Anonymous.
      Fox's autopsy study showed intraluminal abnormalities in the jugular and azygous veins of MS patients, just as has been proposed.
      Autopsy studies may be better than imaging studies in finding this phenomenon. More research needed. Zamboni did autopsy studies too prior to his endovascular treatment research.

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    3. Maren, yes - dr. Fox's autopsy study was so interesting, really. His speech and prof. Zamboni's excellent lecture is seen here:
      http://isnvd.org/ISNVD_Conference/20_CCSVI_Introduction__Part_1_(Moderators__Robert_Fox_cxkjr/access_secret.php?code=YjJodFkybDRiV0ZvYTJONE5tZHdPVFoxTjNrMWNtWm1kV1U9

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    4. whenn I have spare hour and a half I may watch the video

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    5. It is most definitely NO and I don´t get a commission of any kind. This kind of talk is yet another example of what CCSVI has brought to the table. A lot of trashing of fellow MSers, of professionals and anyone that doesn´t agree..
      When I first heard of "the Liberation Therapy" it sounded rather appealing but then it became appalling. Appalling because the science behind it didn´t convince, for me it leaves to many unanswered questions, but most of all because the total lack of respect that that was shown from the devout followers and yes I´m not a scientist but that doesn´t make me stupid or a blind follower of Big Pharma.
      //Swedish Sara

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    6. I quess CCSVI is now in the very beginning of a interesting road, and it will develop - diagnosis, operations and research. It is very interesting part with MS, and gives perhaps explanation to many things:
      - breakdown of bbb
      - lesion location
      - lesion vein relationship
      - slowed blood flow, perfusion
      - iron accumulation around veins, in certain areas
      - even immunesystem activation
      - and promising clinical trial results, 50-70 % operated people notice relief to many symptoms

      Absolutely interesting topic and much more research is coming next year.

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    7. Let us hope the blinded trials report soon and we will have some clarity.......I am not convinced by your optimism, the data appears to stack the other way.

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    8. Me too, I am very interested about blinded trials. so in 2 years we know results. There are now 2 kinds of data.. and lots of controvercy with mixed doppler results. I saw lecture by doppler experts and it was said many times that "training is the key". They are also planning multimodal imaging / diagnosing with CCSVI.

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    9. Will it really be 2 years before we heaar any results from the blinded trials?

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    10. Maybe even sooner.. I think that Brave Dreams study is ready in two years (just my though). And there is also study in New York and smaller study in Buffalo University.

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    11. I think the blinded trials will be of little value and are premature. The research and Science behind ccsvi is fluid, (punn intended). More veins are involved than initially realised, it is not just a case of opening up the ijv's and wham bam thank you Mam. MD I wouldn't put your hopes on this going away on the basis of these studies, the research WILL continue.

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    12. "MD I wouldn't put your hopes on this going away on the basis of these studies, the research WILL continue."

      If that should be the case a lot more money will be (in my opinion) wasted which could be much better spent elsewhere, particularly in the area of neuroprotection. I suspect no amount of research findings indicating the uselessness of "liberation therapy" will ever be enough for the "truthers" out there.

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    13. They are not premature.... You as an MS community have been calling for this to happen and this is why yhte Canadian government is spending over 8,000,000 dollars on this....but could the trials may not be designed well. That is opinion and is a real possibility as so many studies fall foul.

      However if the effects of venoplasty are so apparent then as people maintain then in a blinded study they should be too. If it does not show this in the blinded studies then it is a placebo effect and it will be end of story in most peoples eyes, importantly with the powers that be. If there is an effect then it can be embraced. However, many good drugs have fallen this way. Yes some people will carry on as they have with any favoured idea.

      The research will continue but who will pay for it? If an MS Society has been burned by a few million, it is not going to want to put more money down the same black hole

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    14. Yep so 2 more years of abuse in store for us.

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    15. I have quite similar though like Andy Clarke, findings and research is still very new and probably much bigger thing, than just narrowed / obstructed jugular/azygosveins - time will tell.
      My wife's plasebo effect have lasted now over 2,5 years, which is so wonderful. In her case, results were much more than we expected. I don't know how long plasebo lasts, but 2,5 years is quite long time.

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    16. 2 more years of abuse ? I anticipate much longer than that MD :-) plus you know you love it, it makes you feel special and needed.

      Regards as Always and a Happy New Year

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    17. We may have thick skins but cut us and do we not bleed?

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    18. and if you wrong us, shall we not revenge ?

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    19. What are you trying to say Andy?

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    20. How exactly are we wronging you Andy?

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    21. I take it English Lit isn't your area of expertise MD2 ?? Anon, I don't bother replying to anyone who hasn't the decency to at least come up with a pseudonym.
      Try Googling 'The Merchant of Venice' by the one and only Shaky, that's the 'Bard' not Stevens btw ;-)
      It was a reposte to the line from MD "cut us and do we not bleed'.

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    22. Ah, I see. Did 12 th Night not Merchant of Venice at O level Eng Lit.
      Got a grade 1 though!

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    23. Well done you !!!! I knew you would get there in the end, let's hope you're not so slow on the uptake with the vascular issues within MS. oooppss. :-(

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    24. I see too, you were not implying you've been wronged. You were just completing the quote.

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    25. Well done everyone :-) (bring back MD all is forgiven )
      Regards as always

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    26. CCSVI is still a crock of **** though ;-)

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    27. Last comment sounds quite scientific :)

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    28. Yes, it's one of the most commonly used scientific terms you'll hear around labs ;-)

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    29. Maybe the only one :-)
      well you will keep settin em up :-) Such fun.

      Regards

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    30. We're still waiting for one from you Andy ;-)

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  4. What do I think... The curve peaks in the summer/fall of 2010 which is when the CCSVI procedure became widely available. People seek info on ccsvi prior to having the procedure. Such high numbers of people have now had it done that you would expect a fall-off in people with the means to do it. The risk-takers have taken the risk, potentially leaving fewer to participate in the proper route of randomized controlled trials. I am not sure if google alerts is the best way to measure since info on CCSVI is being spread socially such as on Facebook. But it would measure interest generally. It now seems to be holding steady at 20. How many does 20 represent? Canada is definitely showing the most interest, possibly due to the media coverage of CCSVI and word of mouth, next to Italy which is where Dr. Zamboni is based.

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    1. Also, Cece - the numbers are slowing. Those who go for venoplasty have re-stenosed or progressed, despite having free-flowing blood.
      CCSVI has roots in reality and an awful lot of 'shilling' and fluffing from around the world. It isn't helped by people like you, who don't even have a formal diagnosis of MS.
      MS is complicated. CCSVI is expensive. You don't even have MS.

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  5. What do i think.
    Brings out the nutters especialy the nutters from leicester

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