Friday, 6 June 2014

Rehabilitation in MS

RIMS meeting programme, Brighton 2014. MSBlog #MSResearch

"The following is the final International Rehabilitation in MS (RIMS) programme. The 2014 RIMS congress is in Brighton and has a varied list of topics being covered. The good news is that there is a lot of research activity on the rehab side; so not all the focus is on DMTs, relapsing MS and prevention. A lot can be done for MSers who have symptomatic problems and disabilities."

3 comments:

  1. Lots of reference to behaviour change! Are we MSers misbehaving? I just want the researchers to find therapies to fix me. Just want to live a normal life. CBT is just brainwashing to convince us that things aren't so bad!

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  2. I agree with the above poster. Positive thinking can only go so far.
    I will add that the focus of change being on the MSer is grossly simplistic and somewhat offensive. MSers have to adapt and often this is time and time again. Perhaps if the focus on change looked at better access to DMD’s and more proactive neurologists MSers would not have to cope with so many losses.

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  3. Yes, well said above! I too am tired of being dictated to by a medical system which is content to passively block anything which smacks of innovation. I want to try medication (within reason) to see if a symptom is reduced for me. Why is it deemed necessary to do clinical trials first on a medication already prescribed for other conditions and the side-effects of which are already understood. Rehab is a nice safe lucrative option which is non-challenging - lack of progress is just the way it is with this bewildering condition. (I apologize for my rant, but welcome the chance to say how it is.)
    Jill

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