Wednesday, 11 February 2015

Overcoming memory problems: an aide memoire

For those of you with memory problems who may forget that you have had a relapse or relapses, the SymTrac app has now available on Android. SymTrac has been available on iPhone for nearly a year; typical iPhone snobs. I wonder who made the decision to launch on the iPhone when over 90% of MSers with smartphones won't have iPhones. For those of you with dumb phones, Windows Phones, or Blackberry, you can download a paper version from the website (SymTrac). 

Please note this App was developed by Novartis who make Gilenya that is a second-line drug. If you have breakthrough activity as monitored using SymTrac you may be eligible for escalation therapy, which may include Gilenya, Tysabri or Lemtrada. If you are on Gilenya you may consider changing to another agent.

Please let us know what you think of the App? Can we make a better one as part of our ClinicSpeak suite of apps? 

P.S.  I AM RELIABLY INFORMED THAT IN CONTRAST TO WHAT SOME OF YOU MAY THINK, THERE IS NO BIG BROTHER AT WORK AND YOUR DATA IS NOT BEING COLLECTED


CoI: Prof G and the medics loads. Me none!

15 comments:

  1. Why do they have to be so patronising and treat us like school kids?

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  2. Why does this app need to send emails to my contacts without my knowledge, modify or delete contents of my usb storage and read both my contacts and content stored on my phone ?

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  3. Nice cartoon...........but here's a thought instead of putting the onus on the MSer who may or may not have cognitive problems, how about the Dr. or better yet a nurse who may be able to devote a few more minutes with the patient, to go over a standard checklist of common problems associated with MS. Don't get me wrong, technology is great but where's the human element pharma?

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  4. I've spent a frustrating 15 minutes trying to put my symptoms into the app and have now uninstalled it.

    It only allows you to put in symptoms from their list on defined parts of your body. So you can't just say Fatigue is bad today and then give it a score, you have to identify an individual part of your body that they've specified you can select (top part of your right foot, nose, etc) and then give bothersome / impact on daily activities scores out of 10.

    It would need a big improvement in flexibility for me to find it useful so I would hope you could do much better !

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    Replies
    1. I am told thank you for your suggestion and am told that the new version has fatigue in built.

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  5. 'SymTrac has been available on iPhone for over a year; typical iPhone snobs. I wonder who made the decision to launch on the iPhone when over 90% of MSers with smartphones won't have iPhones.'

    Actually I use an iPhone for around 7 years) and an apple macbook pro (well over 20 years using Macs)and an iPad (a new toy)... So there;)
    But I wouldn't dream of downloading this app, that's how snobbish I am. Not really it's got more to do with not finding apps that useful (apart from a step counter, that is) and being 'spied' on.

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    1. This comment is based on the market share of smart phones, if you are a designer I suspect you wouldn't be seen dead without an apple however at the moment Android is King.

      Not having an iphone I have not been looking at who gets what. Does the info go to Novartis Central?

      However, if you don't want to be spied on I suggest you throw away your computer and notably your smart phone or dumb phone for that matter as your position is always known by triangulation from the phone receivers..... Don't you worry that as google try and link your phone number to use of anything google, they are not tracking you every second of the day.

      Who needs the CIA when you have Google..or is Google really just a branch of the CIA? :-).

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    2. I keep all my devices in lock down as much as possible. A pain to do, and nothing is ever 100% secure. That goes for why I would never use the Cloud, nor gmail (I pay for relatively secure email account and apple is much easier to lock down than Android).

      The CIA is the least of my concerns, it's the marketeers like google that concern me (and I say this as one!), and usually it's all about the money (directly or indirectly).

      The internet is a double edged sword - great for sharing knowledge (like with this blog) but it also brings many problems too. Although not a serious book but quite a good thriller (especially if you are relatively techie) I recommend Robert Harris: the Fear Index, to get a dystopian idea of what -potentially - awaits us (and AI is now getting to this stage in reality). Beugh!!

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    3. I have been informed that your data is not being collected, as per terms and conditions
      Hope this clarifies things

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    4. apparently it is only nine months and not a year.

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  6. So nice of Novatris to have us MSers welfare at heart by issuing this free app after trying to sue the NHS for not using its overpriced drugs.

    I don't hear a peep from this blog about that.

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  7. This blog has had a say on Novartis and overpriced drugs:

    http://multiple-sclerosis-research.blogspot.com/2012/05/interesting-id-popped-with-comment-that.html

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  8. I don't use any apps as I refuse to have a smart phone - I take from technology what suits me and being pestered by a phone and getting a neck ache from being a phone's servant does not interest me. However, I did download the paper version - what a useless tool that is! If you have multiple signs or symptoms you are tracking you'd need to use up half a forest over time to keep track of them, not to mention the daily admin overhead in ticking your boxes. Does the phone app allow you to record medications?

    I must say tho, that I had the best laugh all week over the paper version's androgynous Ken doll image! If a bloke's MS is affecting his bladder or sexual functioning, how the hell is he supposed to mark that on the image, when it doesn't have a pecker?

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