Tuesday, 20 October 2015

Drug Repurposing Bill


#POLITICSPEAK  Support #DrugRepurposingBill #MS #MSResearch

Off-patent Drugs
Right now, researchers are investigating whether drugs that exist to treat other conditions can also be used to treat MS. These are drugs like Simvastatin, a drug normally used to treat high cholesterol.
Research shows this drug has the potential to slow the worsening of disability in secondary progressive MS. If further research confirms this, we’d want this drug to be made available on the NHS, but there are currently significant barriers that would prevent this. You can read more about the process on  MS Society  blog.

How can we change this?
An MP, Nick Thomas-Symonds, has introduced a Bill in Westminster to tackle this problem and improve access to low-cost treatments for a range of conditions including multiple sclerosis.

Take action 

CLICK ON THE ORANGE (BELOW) IT WILL TAKE YOU TO AN EASY TO FILL OUT FORM AND you don't need to write a letter THE MS SOCIETY CAN DO THE REST

To ensure the Bill is successful, we need at least 100 MPs to go along and vote for it on Friday 6 November. And we need you to contact your MP and encourage them to back the Bill.
The vote is on a Friday, when most MPs return to their local constituencies, which makes it more difficult to convince them to be in Westminster. 

Your email could make all the difference  please email them today 

We and the MS Society are supporting this Bill to ensure people with MS have access to the right treatments at the right time. Please ask your MP to do the same.

Thank you for your support. 


#1MinuteOfYourTime support the #Drugrepurposingbill

1 comment:

  1. Following the response I received recently, I've contacted my MP again. Since the incidence of MS is particularly high in the region of the UK where I live, I am hopeful that he will be supportive. An excerpt of what I wrote this time:

    "There are currently no medicines available for my condition - primary progressive multiple sclerosis. This disease, by way of damaging my nervous system, has severely eroded my abilities to walk and to work. Though I am only in my late 30s, I must deal with extreme fatigue, and can only walk a limited distance using walking poles. In some people, severe progressive MS can completely destroy mobility, upper limb function and continence. It can cause difficulties with speech, swallowing and breathing.

    It is highly likely that there are neuroprotective drugs already in existence which would slow MS progression. But due to what is essentially red tape and beaurocracy, these drugs are not reaching people with progressive MS. People like me do not have the luxury of time. The Government must find a way to deal with the barriers preventing a potentially massive and invaluable resource of repurposed drugs reaching people whose very lives depend on it. Those responsible in Government must take on board the urgency of this situation and act decisively to resolve this terrible impasse."

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