Wednesday, 31 January 2018

Is there someone you want to hear from?

You will have noticed over the last 5 months that we have been trying to get more guest bloggers engaged with our blog. We would love to increase the volume of guest posts to increase the diversity of opinions and topics on all things MS. Variety is the spice of life and a lot of what we have to say is repetition. 

We don't want to bore you! You need to hear from other experts in the field. If you know someone engaged in MS who has something to say please ask them to contact us (bartsmsblog@gmail.com) about doing a guest post.




This is a call to potential guest bloggers. If you have done a piece of research and you want to communicate it people with MS, and other MS stakeholders, please contact us (bartsmsblog@gmail.com).

Your intentions should be altruistic and in keeping with our blogging philosophy. We do not want to monetize the blog, therefore, no advertising or links to commercial sites. Please remember the views presented in each post have to be yours and have nothing to do with Barts-MS and our organisations (Queen Mary Universty London & Barts Health NHS Trust). We are also are not a platform for pseudo, or fake, science, nor fake news or alternative facts. We will, therefore, have final editorial control over what we accept and publish on the blog.

To post you have to provide a lay summary of the work with a link to the publication. In addition, we need a short biography, a disclosure statement and a picture. It is important that the readers know who you are. We also expect all guest bloggers to come back to the blog frequently to answer any questions from our readers. 


Thank You! 

17 comments:

  1. I'd love to hear from a team involved in repair. When I was diagnosed some 5 years ago it was reported that Professor Scolding had completed a Phase 1 stem cell trial and his team were moving to a Phase 2 trial. It's all gone quiet. Likewise with the work of Profs Franklin and Ffrench-Constant - lots of promising reports on the MS Society website (and I donated money), but all gone quiet. I'm fed up with the announcements of promising earlier results, the fundraising bit, and then nothing comes of it. There's a lack of transparency in MS Research. The UK has world class MS research centres (Cambridge, Oxford, Bristol, Glasgow, Edinburgh, London (various), but I don't see much coming out of them. Apart from Alemtuzumab and oral Cladribine it's been pretty poor. MS research seems to be in the doldrums. 10 years ago, MS was an inflammatory disease affecting myelin with four distinct diseases. Now MS is a neurogenerative disease from the outset, it is one disease not four, and it is way more than a white matter disease. In all honesty, I don't think the researchers have a clue what this disease is about. It annoys me that experts were handed out awards in the past given that there theories and research on the disease was incorrect. Time to give the research to cancer research teams - they seem to make real breakthroughs + the only drugs that have an effect on early MS are re-purposed old cancer drugs. In 2018 we should be in a much better position than we are in terms of the understanding and treatment of this disease.

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    1. DO YOU THINK WE CAN GET AN MS SOCIETY AWARD:-)

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  2. i'd like to hear from Gavin Giovannoni.

    I am not sure what happened, but he suddenly shifted most of his activity away from this blog to his twitter feed.

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    Replies
    1. A decision was made to widen the scope of the blog and not to overload readers. Hence I am not posting as much on the blog. Twitter feeds take minutes, blog posts take hours, which gives me time for other things (research, etc.).

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    2. I now want to hear urgently from Bibiana Bielekova.

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    3. Never mind - you guys seem to chilled about Bibi's meta-analysis. I will write to her directly asking for her views.

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    4. ProfG Why don't you add a twitter widget on the blog and link it to yours and others from here accounts? It might be refreshing.

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  3. Prof G; at one point you hinted you’d a series on exercise being a potential DMT.
    I’d love to hear more about this; and whether a guest poster can contribute, I don’t know?

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  4. I'd love to hear from Dr. Dre. He's totally disappeared from this blog.

    ReplyDelete
    Replies
    1. Some might say that's a good thing. I couldn't possibly comment. ;-)

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    2. Sunning himself in Dubai no doubt :-)

      Maybe he will turn up to the teaching session, but can you teach an old dog newtricks :-(

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  5. God, if he's too busy then the next closest being in neurology/neuroscience ( ) insert name here. Im sure you have plenty of candidates:-D

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  6. I would like to hear from some of the Northern powerhouse innovators who are doing things in the U.K. like the Sheffield team doing the stem cell stuff. I would especially like to hear from any MS Nurse innovators about cool projects to improve quality of life for MSers

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    Replies
    1. Their guest post in response to their Panorama programme didn't inspire me as it lacked balance. Maybe next time.

      I'd love to hear from MS nurses.

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  7. More ideas on progressive MS research, not just more of the tired droning effectively saying "the current DMTs are good enough, start swallowing/injecting, but really it's too late for you": more about neuroprotectives, microglia. And still less from the shrill HSCT mob.

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  8. I would like to see more posts from the South, Central, Asian and African neuros (resident in Africa). Reports of the evolution of both the treatments and the very pathology of MS in citizens of these regions, continents.

    Here, for example, in Brazil, MS is considered to be a disease (the exact number of people with MS here is not certain, it is very out of date due to the mess and devaluation of public and private health data in the country), but it is perceived that because of the strong miscegenation among whites, Indians, blacks and asians, MS seems not to be a predominantly caucasian disease.
    We have a high incidence of optic neuromyelitis, now treated as rituximab. Here we do not have the figure of the nurse, a specialist in the management of a particular pathology.
    And even with the high solar incidence the numbers of the MS have increased yes in the last 20 years. But it seems that in Colombia the incidence of MS is much lower.

    I really like the blog, I learned a lot in these almost 04 years I follow it, I even learned how to manage the disease in me. Almost daily reading required.

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