Yesterday there was a press release from Roche announcing ORATORIO-HAND a new phase 3 trial in people with PPMS, but only this time recruitment will extend beyond EDSS 6.0 up to EDSS 8.0, i.e. wheelchair users. The primary outcome will be the 9-hole peg test.
For people in the field of MS, the announcement of the ORATORIO-HAND trial represents a milestone in the history of MS. It challenges the dogma that once you have more advanced MS (progressive disease) that you are 'irredeemable' and sends a message of hope to all people with MS in wheelchairs that we haven't forgotten you.
I hope that our long-running #ThinkHand campaign will play a part to play in getting the wider MS community and other relevant stakeholders behind this study.
|Alison Thomson presenting our #ThinkHand campaign at the 2016 MS Trust Conference |
Please note that I have a new disclosure in that I will be the principal investigator on this study.
Labels: #ThinkHand, ORATORIO study, ORATORIO-HAND, Primary Progressive MS, Roche