Saturday, 23 June 2018

Stornoway research day: What does the future hold?

Prof G discusses upcoming treatments for progressive MS and the importance of maintaining brain health and upper limb function. 



Watch Prof G's talk on our Youtube channel (it's a bit longer than the others, but an interesting half an hour if you've got the time!) And subscribe to our channel to keep up to date with our talks and videos.


This is similar to the last talk we put out, but this is for the healthcare professionals day, rather than pwMS. The audience consisted of district nurses, physios, health visitors, GPs and many others that look after people on the island. Most had a general role, and didn't specialise in MS, so these talks were to inform them about taking care of their MS patients.

The talk is part of a trip by the Barts-MS and Glasgow teams up to Stornoway, on the Isle of Lewis, in April 2018. In a change from the traditional research days held in London, Barts-MS teamed up with the Glasgow neurology team to present two days of talks: a day of talks to healthcare professionals on the island; and a day of talks to patients and their families. There are no neurologists on the islands and patients have to fly to Glasgow. Yet rates of MS are some of the highest in the world. The teams wanted to help healthcare professionals to more effectively care for their patients with MS, and to empower the patients and their families so they can self-monitor and better control their care and treatment. Read about our research days in Stornoway.

7 comments:

  1. Prof G mentioned at 29:00 that the modifiable risk factors (there was EBV, Genes, Vit D and Smoking) needed to be updated as something was missing, any ideas what that was? Perhaps obesity but I'm not sure!

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  2. I guess my neuro is paying attention to (or the same research as you, prof G.}, so thanks for the confirmation we're on some tracks.. (statins, and the trial for Biotin).

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  3. How about abandoning the definition of MS in clinical grounds and shifting it on more stable and objective ones? You can't reach a cure unless you can strictly define the disease, right?

    Central vein sign differentiates Multiple Sclerosis from central nervous system inflammatory vasculopathies.
    https://www.ncbi.nlm.nih.gov/pubmed/29328521

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    1. I don't think MS is defined on clinical grounds. According to McDonalds MS means that you have demyelinating lesions of unknown origin distributed in space and time. Therefore is a pathological definition. Of course diagnosis can be clinical.

      Anyway I admit that "demyelinating lesions of unknown origin" is a requirement that should be narrowed.

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  4. With respect to your referencing antihistamines ProfG where does clemastine sit in this regard, when it's perceived as potentially beneficial to PwMS??

    Really support your emphasis on rehabilitation! If access to a program were available here in the UK, and elsewhere, I'm convinced of the benefits/achievements that would be realised!

    I'm fortunate enough to have access to a neuro physio and to be able to afford to see her. Although I already exercised, I have never before experienced the weird and wonderful things she has had me do. But thanks to her I lost the walking stick, stopped tripping with dropfoot and have improved balance and that was even before any treatment started with Alemtuzumab!

    Bring on much more NHS rehab that's what I say. It'd save money in the long-term and most importantly improve quality of life. Though I will add - you HAVE to do the exercises regularly or even continually - and it's worth it!

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  5. Avoiding antihistamines, does include Clemastine?
    It is doing well in the trials as a remyelinating agent.

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  6. Prof G mentions bladder problems might be a poor indicator in MS.

    But recently I heard a program (on the BBC I think) which stated that one in three adult women have bladder problems (in the general population, not just MS). And one in nine adult males. I found these statistics quite surprising.
    Though this can include mild to heavy incontinence and in females be caused by child birth for example.

    So how do we tell if the bladder problems are due to the MS or not? thanks

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