Wednesday, 4 July 2018

MS Brain Health newsletter – June 2018



Dear supporters 
Over the past month, we have presented MS Brain Health research at major conferences in Europe, the USA and Australia and learned more about the experiences of people living with MS in the USA. It has been great to meet some of you in person at these events, and we are pleased to welcome many new supporters!
Consensus standards presented at EAN 2018 
International consensus standards for the timing of key stages in MS care were presented in our focused workshop, Brain Health in MS: a catalyst for a new approach to management, at EAN 2018 in Lisbon this month. Over 150 attendees joined this interactive workshop and gave their responses to the new quality standards.
Professor Gavin Giovannoni, Dr Gisela Kobelt and Professor Jeremy Hobart gave presentations and participated in a lively Q&A session. "The standards should not be used as a means to criticize MS teams, but instead provide an opportunity for every MS clinic to strive for the highest level of care," stressed Professor Hobart.
Read more
Latest MS Brain Health presentations available to download
Professional organizations in Australasia endorse the policy report
MS Nurses Australasia and the MS Neurology subspecialty group of the Australian and New Zealand Association of Neurologists have become the latest professional groups to officially endorse the policy report, Brain health: time matters in multiple sclerosis. We're delighted that these groups have joined our other 46 endorsers.
Revisions to criteria used in the diagnosis of MS
Motivated by recent technological advances and new data on the diagnosis of MS, experts have refined the 2010 McDonald criteria – the widely used diagnostic criteria for MS. The experts hope that the updated criteria will facilitate early and accurate diagnosis of MS.
Read more
New! Dutch translations of short guides
We are delighted to announce that our guide for people with MS and nursing resource are now available in Dutch. Follow the links above, click 'Download' and select your language.

Please do share these resources with your Dutch-speaking colleagues and friends.
You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!
Gavin Giovannoni, MD

Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haartsen, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen
 
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MS Brain Health activities and supporting materials are funded by grants from Actelion, Celgene and Sanofi Genzyme and by educational grants from Biogen, F. Hoffmann-La Roche and Merck KGaA, all of whom have no influence on the content.

Editorial and administrative support for the MS Brain Health initiative is provided by Oxford Health Policy Forum, a not-for-profit community interest company registered in England and Wales (registration number: 10475240).

2 comments:

  1. You forget to disclosed this presentarion you did for Merck

    MERCK TALK – Multiple Sclerosis 10:15 - 10:30 Scientific Theatre

    Presentations

    Selective Immune Reconstitution Therapy in the Multiple Sclerosis treatment paradigm
    Gavin Giovannoni, London, United Kingdom


    https://www.ean.org/lisbon2018/Scientific-Programme.3370.0.html

    ReplyDelete
  2. ....And Roche....



    Patients' Choice
    Highlight
    Rare Disease
    Overarching Theme

    Day 1 (16.06.2018)
    CDS
    Career Development Session 1
    08:30 - 10:00 Room Oslo

    Etiological investigation of disease: case-control studies
    CW
    Case-based Workshop 1
    08:30 - 10:00 Room CbW

    EAN/EAPC: End-of-life care for neurological patients
    FW
    Focused Workshop 1
    08:30 - 10:00 Auditorium III

    Brain health in multiple sclerosis: a catalyst for a new approach to management
    FW
    Focused Workshop 2
    08:30 - 10:00 Auditorium V

    Biomarkers of neuromuscular disorders
    FW
    Focused Workshop 3
    08:30 - 10:00 Room Lisbon

    The importance of brain network reorganisation in old age and for successful rehabilitation after stroke
    FW
    Focused Workshop 4
    08:30 - 10:00 Room Copenhagen

    Ability to drive in neurological disorders
    FW
    Focused Workshop 5
    08:30 - 10:00 Room Berlin

    Overarching theme: Familial amyloid polyneuropathy: phenotype, genetics, treatment
    IaS
    Interactive Session 1
    08:30 - 10:00 Auditorium VI

    EAN/ILAE-CEA: Classification of the epilepsies: Old wine in new skins?
    SpS
    Special Session 12
    08:30 - 10:00 Room Amsterdam

    25 Years of European Journal of Neurology – History, future and how to prepare your paper for publication
    3DS
    3-Days Satellite Session 1
    10:00 - 10:30 Room 0.01

    CELGENE - The importance of real world evidence generation in Multiple Sclerosis
    FP
    Forum Programmes 1
    10:15 - 10:30 Scientific Theatre

    MERCK TALK – Multiple Sclerosis
    Presentations

    Selective Immune Reconstitution Therapy in the Multiple Sclerosis treatment paradigm
    Gavin Giovannoni, London, United Kingdom

    S
    Symposium 1
    10:30 - 12:30 Auditorium I

    EAN/MDS-ES: Tauopathies: pathophysiology, clinical features and experimental therapies
    S
    Symposium 2
    10:30 - 12:30 Auditorium VI

    Diagnosing genetic epilepsies
    S
    Symposium 3
    10:30 - 12:30 Auditorium V

    EAN/ESO: Cerebral small vessel disease - recent advances and clinical implications
    S
    Symposium 4
    10:30 - 12:30 Auditorium VIII

    EAN/EAPC: Palliative care and neurology
    S
    Symposium 9
    10:30 - 12:30 Room Berlin

    EAN/ECTRIMS: Therapeutic challenges in progressive multiple sclerosis
    ST
    Scientific Theatre 1
    10:30 - 11:00

    European Pain Federation
    ST
    Scientific Theatre 2
    11:30 - 12:00

    EAN grants and other possibilities
    ST
    Scientific Theatre 3
    12:30 - 13:00

    eBook on neurological examination
    SaS
    Satellite Symposium 02
    13:00 - 14:30 Auditorium VI

    ROCHE - Redefining the management of relapsing Multiple Sclerosis & primary progressive Multiple Sclerosis
    Chairperson

    Gavin Giovannoni, London, United Kingdom
    Presentations

    Welcome and introduction
    Gavin Giovannoni, London, United Kingdom

    Suppressing disease activity and progression in relapsing Multiple Sclerosis and primary progressive Multiple Sclerosis
    Gavin Giovannoni, London, United Kingdom

    Ocrelizumab safety across relapsing Multiple Sclerosis and primary progressive Multiple Sclerosis
    Ralf Gold, Bochum, Germany

    Incorporating Ocrelizumab into clinical practice
    Aaron Boster, Ohio, United States

    Questions & Answers
    All faculty, ,

    Closure
    Gavin Giovannoni, London, United Kingdom

    ReplyDelete

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