Thursday, 19 July 2018

We need feedback on our new listeriosis prevention pack - can you help?

We've now developed our listeriosis prevention pack and would like 10 people to test it out and give us feedback to improve it further. 













     



We'll post a kit to you and would like you to open the pack, read through the information and give us feedback on the context, images, objects in the box and how you get in with it.

Why a listeria pack? 

Currently, all we have is a single advice sheet with only basic information. We hope that we can fully prevent any unnecessary infections and enable patients, their family and friends to dramatically reduce the risk of infection.

The Barts MS team have developed the information in the pack with a cross-disciplinary team involving a listeriosis expert, people with MS, designers and healthcare professionals who will deliver it.


These packs will be distributed to all patients prior to alemtuzumab treatment; please note these packs are not only for Barts Health patients; we plan to distribute them to other centres if they want them. 

You can read more about the background to the project on our previous funding page.

If your interested email me (a (dot) thomson@qmul.ac.uk) to get a kit sent to you.


            

7 comments:

  1. Frozen vegetables and listeria has been in the news recently, as listeria survives the the freezer. Supermarkets are recalling some items. I stopped using the microwave to cook vegetables as it doesn't cook evenly.

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  2. Have you noticed any serious infection problems with Cladribine or has it proved to be a much, much safer treatment than Alemtuzumab? And maybe almost as effective?

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    Replies
    1. https://www.ncbi.nlm.nih.gov/pubmed/29991490

      Delete
  3. Saw a recent programme on TV about rising cases of sepsis and other deadly infections. After hearing what was said, I would not now want to risk taking Alemtuzumab to treat my MS.

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  4. Our homes are a bacteria time bomb apparently.
    Tea towels, sponges, bath and hand towels, hair brushes, soap dispensers, wooden spoons and plastic chopping boards for cooking, pillows and water tanks. They have bacteria that cause problems including severe food poisoning.

    Something I need to think about and act on for my Alem infusions due soon.

    ReplyDelete

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