CrowdSpeak: thank you

Crowdfunding success: 20 days and 242 donations later we got there. Thank You! #CrowdSpeak #CrowdacureMS #MSBlog

"I was with my family watching 'The Revenant' this afternoon when I got a text from Sagit Weiss, the Crowdacure founder, to say we had done it; we had reached our funding target. All I can say is thank you, thank you, thank you."


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"I had major reservations about using crowdfunding to fund medical research. Would it be successful? What would the wider MS community say? After your recommended getting the ARTEMIS trial off the ground with crowdfunding we decided to give it a go. The ground rules that Crowdacure apply make sense. The research has to be hard to fund and peer-reviewed by an independent panel. We the researchers had to commit to engage with the campaign. So after 20 days and 242 donations later we reached our target. This will allow us to start the project tomorrow; we will keep you updated."

"As will all successes and failures it is a time to reflect. Somehow enabling Charcot Project 2 with crowdfunding gives it some legitimacy; at least in the eyes of our readers (minus a few trolls). I sincerely hope we can take the rest of the MS community along with us."

"In this week's BMJ (British Medical Journal) there is a quote from Geraldine Strathdee Geraldine a consultant psychiatrist in the NHS and national clinical director for mental health at NHS England. She says something that is as relevant to mental health as it is to MS and helps put the Charcot Project in context."

BMJ Confidential: Geraldine Strathdee: Cooking on gas. BMJ 2016;352:h7017

Excerpt:

..... "There’s an enormous amount spent on mental health - the only problem is, it’s spent on dealing with the adverse consequences of not having given access early to effective interventions or having a proper prevention programme," she told a King’s Fund conference in 2015. She believes that people can be coached into becoming literate about their own mental health and that early intervention will improve self management and avoid lifelong bad outcomes for many.....

Paraphrasing:

"There’s an enormous amount spent on multiple sclerosis - the only problem is, it’s spent on dealing with the adverse consequences of not having given access early to effective interventions or having a proper prevention programme. I believe that people can be coached into becoming literate about multiple sclerosis and that early intervention will improve self management and avoid lifelong bad outcomes for many pwMS."

"Hopefully the Charcot Project will help catalyse an MS prevention programme."

CoI: Team G will be recipients of a grant from Crowdacure to perform this research

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