SurveySpeak & ClinicSpeak: lymphopaenia survey results

A lot of work needs to be done to activate MSers to become more engaged in their treatments. #MSBlog #SurveySpeak #ClinicSpeak

"Many thanks to those of you who completed yesterday's lymphopaenia survey. The results indicate that too few of you are engaged with your pharmacovigilance. You need to engage in tracking your own blood and urine results and understand why you are doing this and the reasons for the frequency of testing. I would expect nothing less from an expert patient. In addition to pharmacovigilance it is also time that you engaged with the tracking of your own disease activity. Please remember information is power and the more information you have about your treatment and its monitoring the more power you will have over your own health and the ability to optimise it. We are entering an era when the activated patient is the change agent that will catalyse the revolution we need in healthcare delivery and consumption; you simply can't rely on the medical profession to do this. Trust me when I say, the medical profession is one of the most resistant professions when it comes to change and the adoption of new innovations."

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