Wednesday, 13 January 2016

Focus group on DMT adherence looking for participants



A team of researchers from Barts MS and King’s College London are designing a series of studies to investigate the factors that contribute to non-adherence so that we can support people taking their medication.


http://multiple-sclerosis-research.blogspot.com/2015/12/clinicspeak-perceptions-on-adherence-to.html#comment-form

We would like your help as experts living with MS and taking DMTs to make sure we include the most relevant issues that people face. So, we are looking for 6-8 people with MS who would like to join us in a focus group to discuss your experiences.

What will the focus group be about?
Treatment with Disease Modifying Therapies (DMTs) is an important part of long-term management of MS, but studies have shown that not all doses of DMTs are taken exactly as prescribed. This is called non-adherence and can impact on the effectiveness of DMTs. At the focus group, we would like you to share your experiences with DMTs, how well you adhered to them, and the possible reasons for this.

When and where?
We expect the focus group to last a maximum of 2.5 hours and will include a number of refreshment and comfort breaks. Depending on your availability, the focus group will take place on either:

  • Tuesday 26th Jan
  • Thursday 28th Jan
  • Friday 29th Jan 
The meeting could be from either 10am - 12pm (arriving from 9.30am) or 2pm - 4pm (arriving from 1.30pm). Please let us know what time and date would be suitable for you. The meeting will be held in an accessible meeting room in Whitechapel, London.

What is the purpose of the meeting?
This meeting will help inform an application to the MS society to develop a theory based intervention to improve adherence in MS. 
 
How to get involved?
Please contact me if you would like to take part in this meeting: Alison Thomson: a.thomson (at) qmul.ac.uk  We have some funding that will cover your travel from within the London area. Please let me know in your email if you need more information about this also.


3 comments:

  1. This is excellent, just to make one comment, I was wondering have we thought of trying to do a meeting like this over some sort of video conference software? Or would that be too difficult for participants to set up.

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  2. We hadn't thought of that. Let me ask the researchers leading the session and get back to you!

    ReplyDelete
  3. Oops sorry about that; I have been in this situation at work when am sharing a design and someone chips in from the peanut gallery...

    ReplyDelete

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